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Post by Rick Redner on May 14, 2014 1:26:36 GMT -5
John Thanks for sharing your experiences. ED was voted as the worst side effect of surgery on our polls which should come as no surprise. I found the more upset I became about ED and the more pressure I put on myself the worse it did. My wife and I now approach sex with the attitude of acceptance. Whatever happens happens. If I can't achieve a usable erection we find other ways to satisfy one another. Taking the pressure off was the best move we made. Hope you'll continue to check in and share what's going on. Stay well and blessings on you.
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Post by waylen on Nov 29, 2014 17:11:14 GMT -5
I left my prostate in Honolulu, Hawaii in October 2012 at 55. Read your notes about your book and you are right there is so much I did not know when I decided to have surgery. Underwent hormone therapy one month before surgery and ended May 2014, had radiation therapy in summer 2013. Right now check ups and PSA <.01. Do not regret surgery but I know side effects have affected me. I want to read your book and understand some of the things I have gone through and by doing that make adjustments to my life for those people that are special to me.
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Post by Rick Redner on Nov 29, 2014 18:06:45 GMT -5
Waylen Welcome to the forum. Learning to live and love without a prostate is challenging and takes adjusting to new realities and limitations. That said many couples are able to use their experiences to grow closer to those they love. Let me know if my book is useful to you. Glad to hear your PSA is undetectable! Rick .
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Post by Lloyd Martin on Dec 1, 2014 9:17:59 GMT -5
Left my prostate in North Little Rock, AR on November 13, 2014 at the Baptist Medical Center, unless Dr. Ronald Kuhn took it with him.....certainly didn't come back to Jonesboro with me!!!!!! (see other post under "Introductions")
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Post by Mike Kott on Mar 8, 2015 12:43:00 GMT -5
I'm 59 and left my prostate in Chicago, Illinois 2 days before Christmas 2014.
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mkohn
New Member
Had DaVinci Prostatectomy on September 22, 2011
Posts: 14
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Post by mkohn on Apr 11, 2015 20:12:31 GMT -5
I left my prostate at Loyola University Hospital in Chicago, IL USA. Not sure if they kept it for research or tossed it.
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Post by tom840 on May 16, 2015 17:39:02 GMT -5
I left mine in Tucson, Arizona, on February 2nd, 2015. Three month PSA check was zero, so I am hopeful for the future. Still dealing with incontenence, but Rick's book gives me hope that I will be able to overcome that as well. Rick's book was very helpful and I am still re-reading parts of it from time to time, and certainly recommend it. I wrote a review on Amazon, where I purchased it, recommending it to others in this situation.
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Post by Rick Redner on May 17, 2015 8:20:56 GMT -5
Tom I wish you the best on your journey of learning to live and love without a prostate. Sometime in the next 30 days you should see some improvement with urinary control. Often the first sign things are happening is you'll wake up one morning and you'll be dry. You'll still leak during the day, but it's a sign things are improving. I read your review on Amazon. I appreciated you taking the time to write it and more importantly I'm glad imy book has been helpful to you. I'm almost finished with my second book. It's about penile implants. I never got the return of erectile functioning that my surgeon said I would. I want men who end up permenantly impotent that there is a fantastic option out there. Here's to the hope and prayer that you have a full recovery .
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Post by tom840 on May 17, 2015 10:01:12 GMT -5
Thanks Rick. I have already noticed an improvement in the mornings, and some as well during the daytime. I am doing my Kegels religiously, with the hopes they will help. My doctor has said that more than 90% of men regain continence, and I am hopeful I will be within that statistic.
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Post by Rick Redner on May 17, 2015 21:35:47 GMT -5
Tom I hope so for you as well. As you know I got out of diapers in 3 months but needed a pad for 19 months. Living in diapers is miserable and usually a sex killing issue. Hope you regain control soon!
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JDT
New Member
Posts: 9
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Post by JDT on May 18, 2015 23:18:01 GMT -5
My prostate is somewhere in the pathology lab of Sharp Memorial Hospital in San Diego. At least it stayed Gleason 6 with negative margins. I've found that I am lucky in that my surgeon hasn't dispensed any BS: given the extent of my tumor (T2c -- both lobes of the prostate) he was very upfront about doing a wide excision on the most affected side and trying nerve sparing on the other side. He was also honest about incontinence, warning me that the day he removed the catheter would be my best for awhile. He did mention that a few people have a hard time peeing for a few days and I ended up being one of the few. Things have loosened up a lot--now 10 days out from having the catheter removed I feel like it is pretty much free flow. That is sort of the problem: while walking the dog, if she stops suddenly and jerks on the leash, I squirt. If I fart, I squirt. And I even squirt sometimes when I try to tense up for a kegel. In a way this is still an improvement--prior to surgery my "BPH" (likely actually just cancer) was pretty noticeable and, if my biopsy had been negative, I was going to ask for something more than Flomax. So now I have the opposite problem. I am guessing that continuing kegels and doing those when I feel like farting/coughing/sneezing/standing up/etc will eventually pay off. Rick, I did read your book--the Kindle version was a bargain (~$3, sorry it can't give you much profit that way) and much of it is useful in the sense of getting a lot of detail from someone with similar experiences. It also showcases the fact that each of our cases are unique and it is always tricky to extrapolate from one to another. Thank you for writing your book--I've read a ton of journal articles on prostate cancer, a personal perspective also helps.
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Post by Rick Redner on May 19, 2015 9:49:00 GMT -5
JDT I wish you the best on your journey of living without a prostate. I think the first year is the most difficult. Glad you found the book helpful even though we will have different journeys. Welcome to the forum. Rick
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Post by amanpros on Jan 29, 2018 3:53:43 GMT -5
Are you having difficulty in passing urine?
Having a retention of urine due to enlarged prostate is treated with trans urethral resection of the prostate. Such problems should not be ignored. Prostate laser surgery results in improved urine flow. consult Dr. Niren Rao, for Prostate Laser Surgery in South Delhi. He is a preeminent Urologist in Neb Sarai, Delhi. Prostate Surgery in South Delhi
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Post by richie57 on Nov 8, 2020 21:48:14 GMT -5
Left mine in South Bend Indiana October 27,2020
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Post by myrtleccapetillooo on Feb 18, 2022 0:58:56 GMT -5
The prostate gland is in the body. After lung cancer, prostate cancer kills more men than any other type of cancer. Many men don't know what the signs of prostate cancer are. Even less people know where the prostate gland is in the body.
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